The Quirky Things About Being a Type 1 Diabetic

Because I am hyper-organised (crap), I scheduled time to write a post for World Diabetes Day—spot the deliberate mistake. Said designated day took place on 14 November, unmarked by we at the Diabetes Diet. Hey ho!

Instead, here I am posting about it more than a week later. You could argue that living with diabetes also takes place on the other 363 days (and the extra one every four years) of the year, so why make the 14th special, although awareness-raising exercises are always useful.

Anyway, I thought I’d list some of the quirky things about living with diabetes. We all know the big stuff, but there are some teeny-tiny bits you put up with which aren’t obvious to those who don’t have the condition…

Gnawing anxiety when parted from your bag. I have an industrial-sized handbag so I can carry around everything—blood testing equipment, two pens, spare needles, jelly babies and a full make-up kit*. When I visit people and they try to take my bag from me to put it with coats, I cling to it. I’m never more than a few metres from that bag.

a picture of a blood testing machine on The Diabetes Diet

A trail of litter that follows you everywhere. I do my best to dispose of it at the time, but I wish someone would invent a small bin that magically appears at your side every time you do a blood test or injection so you can throw away your used needles and blood testing sticks there and then. Every few days or so, I have to do a clear out of my bag where old needles, their wrapping and used sticks gather at the bottom. Once, I was in Regent’s Park in London and I spotted a used blood testing stick on the group and it delighted me. I knew it wasn’t mine**, but the thought that there was another type 1 in the vicinity felt comforting.

An aversion to ordering drinks when you are out that are in a glass. How do you know it’s the diet version? I only feel secure when my drink comes in its bottle or can. Otherwise, you might end up drinking the full-sugar one which will hit you like a sledge hammer almost immediately.

Puncture-marked fingers. I’m still on the waiting list for the FreeStyle Libre so in the meantime, my fingers keep that little collection of black dots that marks frequent finger pricking. You are supposed to vary the fingers, but my right hand bears the brunt of tests because I’m left-handed.

Toilets are very important. High blood sugars make you pee a lot and the first thing I work out whenever I go anywhere is—where’s the loo? Also, I’m not fussy. I have friends who won’t use dirty toilets such as the ones you get on trains. I don’t care. It’s a loo and it’s going to take me from bursting discomfort to huge relief in minutes.

It’s a full-time job. Managing diabetes takes up a lot of time and energy. You don’t get holidays and you can’t quit, and you have to do it on top of everything else you do. The boss is often a moody cow too. The skill-sets needed include arithmetic (figuring out insulin doses to match food), organisation (making sure you have everything you need when going out and keeping on top of your prescriptions), an understanding of biology and how your body works, and the ability to forward plan for most aspects of your life.

 

*Strictly speaking, not needed for diabetes

**On second thoughts, it could have been. Those things get everywhere. I’m always finding them in weird places.

World Diabetes Day

Today is World Diabetes Day – happy diabetes day to my fellow (and female) diabetics the world over. May your blood sugars be stable for today at least. No hypos or hypers are allowed…

Who knows what the next year will bring? There have been lots of exciting developments in the diabetes world over the last 12 months – from the first hybrid insulin delivery system to the NHS’s decision to offer flash glucose monitoring, to the identification of a new biochemical ‘signature’ as a potential early indicator of type 1 diabetes onset, we edge closer than ever before to understanding and properly managing this condition.

One piece of news I spotted recently that has implications for all of us (and is relatively easy to do) was research that has shown that people with type 1 diabetes who are more active have a lower risk of premature death than those who don’t exercise.

Diabetes.co.uk reported that the Helsinki study. It followed 2,639 people with type 1 diabetes, 310 of them had diabetic kidney disease. They were followed up eleven years later. During the course of the research, some 270 people diets. In the least active group, the death rate was 14.4 percent. Only 4.8 percent died in the group who performed more exercise. Activity seemed to benefit patients who had kidney disease and those who didn’t.

The lead study author, Der Heidi Tikkanen-Dolenc from the University of Helsinki and Helsinki University Hospital, said: “Doctors have always prescribed physical activity for their patients with type 1 diabetes without strong evidence. Now we can say that in patients with type 1 diabetes, physical activity not only reduces the risk of diabetic nephropathy and cardiovascular disease events but also premature mortality.”

Keeping active is a challenge in this day and age. Our governments and big business have unwittingly conspired to create a world where the default way to live is a sedentary one where cheap, nasty junk food is all-too-readily available. Being active and exercising often takes a lot of effort, unlike populations who lived years ago who were active because they had to be.

But the message that exercise can help prevent premature death IS a powerful one. Let’s celebrate World Diabetes Day with a walk!

Pic thanks to maxipixelfreepictures.com

 

World Diabetes Day

world_diabetes_day_logo-svgToday is World Diabetes Day. We send fond greetings to all those with diabetes all over the world.

No doubt, innovations in healthcare continue to offer improvements for we diabetics. When I was diagnosed in the 80s, blood testing wasn’t routine, there were few insulins on the market and logging your results meant writing them down in a little book. [As a teenager, I used to sit in the doctor’s waiting room, filling in the results using different-coloured pens to fool the doctor that I’d been doing tests regularly – did anyone else do this?!]

And now – there’s continuous glucose management, FDA approval of a so-called artificial pancreas and access to tonnes of information about diabetes thanks to the internet. There’s never been a better time to be a diabetic.

On the other hand, levels of type 2 diabetes are soaring. Our healthcare systems will not have the funds to cope with this epidemic. What will happen in the future when there are so many people suffering from diabetes-related complications? What will happen to families, watching people suffer from this condition?

Take time to think about diabetes today. If you have diabetes yourself, we wish you long and continued good health. And if there’s a diabetic in your life, give them an extra hug today.