The Quirky Things About Being a Type 1 Diabetic

Because I am hyper-organised (crap), I scheduled time to write a post for World Diabetes Day—spot the deliberate mistake. Said designated day took place on 14 November, unmarked by we at the Diabetes Diet. Hey ho!

Instead, here I am posting about it more than a week later. You could argue that living with diabetes also takes place on the other 363 days (and the extra one every four years) of the year, so why make the 14th special, although awareness-raising exercises are always useful.

Anyway, I thought I’d list some of the quirky things about living with diabetes. We all know the big stuff, but there are some teeny-tiny bits you put up with which aren’t obvious to those who don’t have the condition…

Gnawing anxiety when parted from your bag. I have an industrial-sized handbag so I can carry around everything—blood testing equipment, two pens, spare needles, jelly babies and a full make-up kit*. When I visit people and they try to take my bag from me to put it with coats, I cling to it. I’m never more than a few metres from that bag.

a picture of a blood testing machine on The Diabetes Diet

A trail of litter that follows you everywhere. I do my best to dispose of it at the time, but I wish someone would invent a small bin that magically appears at your side every time you do a blood test or injection so you can throw away your used needles and blood testing sticks there and then. Every few days or so, I have to do a clear out of my bag where old needles, their wrapping and used sticks gather at the bottom. Once, I was in Regent’s Park in London and I spotted a used blood testing stick on the group and it delighted me. I knew it wasn’t mine**, but the thought that there was another type 1 in the vicinity felt comforting.

An aversion to ordering drinks when you are out that are in a glass. How do you know it’s the diet version? I only feel secure when my drink comes in its bottle or can. Otherwise, you might end up drinking the full-sugar one which will hit you like a sledge hammer almost immediately.

Puncture-marked fingers. I’m still on the waiting list for the FreeStyle Libre so in the meantime, my fingers keep that little collection of black dots that marks frequent finger pricking. You are supposed to vary the fingers, but my right hand bears the brunt of tests because I’m left-handed.

Toilets are very important. High blood sugars make you pee a lot and the first thing I work out whenever I go anywhere is—where’s the loo? Also, I’m not fussy. I have friends who won’t use dirty toilets such as the ones you get on trains. I don’t care. It’s a loo and it’s going to take me from bursting discomfort to huge relief in minutes.

It’s a full-time job. Managing diabetes takes up a lot of time and energy. You don’t get holidays and you can’t quit, and you have to do it on top of everything else you do. The boss is often a moody cow too. The skill-sets needed include arithmetic (figuring out insulin doses to match food), organisation (making sure you have everything you need when going out and keeping on top of your prescriptions), an understanding of biology and how your body works, and the ability to forward plan for most aspects of your life.

 

*Strictly speaking, not needed for diabetes

**On second thoughts, it could have been. Those things get everywhere. I’m always finding them in weird places.

Diabetes Resolutions for 2018

diabetes dietHave you made yourself big promises this year? It’s tempting to say, “Well, 2018 is THE year I eat low-carb ALL THE TIME and achieve near-normal HbA1c results every time I get my levels checked…”

I decided on some small goals this year. And when I’m finished, it’s your job to add your own super small goal to the comments – the more modest and dafter the better! As any goal-setter knows, wee ones are achievable and sustainable.

  1. Change the needle on my blood lancer more frequently. There is a video on YouTube where a young type 1 confesses to changing hers infrequently. I’m the same. (Blushes deep red – like, weeks can go by…)
  2. Inject mindfully. When you’ve had diabetes for 35 years, you do injections automatically to some extent. I won’t be the only person who sits down to a meal and can’t remember if the medication has been taken or not. Pump users don’t get this, as their device will tell them. You can also get pens that tell you too. In the meantime, FULL ATTENTION INJECTIONS only*.
  3. Stop going on about my steps. See my earlier post on this. Is there anything duller than the step bore?
  4. Tell people in the gym I have diabetes. Ahem, I don’t bother ‘fessing up when the instructors ask if anyone has anything wrong with them as I hate drawing attention to myself. But it’s irresponsible of me.
  5. Stop reading articles about the ‘potential’ cure for diabetes. Whatever stage this is at, it’s a long way off. I’ll pay attention when it’s the headline article on BBC News at Ten.
  6. Book in for a pedicure. Tenuous, I know, but we diabetics are supposed to take extra care of our feet so an hour of having them rubbed, descaled and anointed with unctuous cream counts, right?
  7. Stop thinking having diabetes makes people fabulous. My example here is James Norton. Before November 2017 I was already in love with James. Then, I found out he’s a type 1 diabetic and my heart imploded. Oh sod it, that’s not a resolution. Clearly, diabetes makes you AMAZING.
  8. Turn down s**t I don’t want to do and use the diabetic excuse. I’ve had 35 years of not using it, so it’s about time I took advantage.

 

*I joke about this, but there’s a serious side of course. Inject yourself twice accidentally, and you’re at serious risk of hypoglycaemia.